National Respite Coalition
The Policy Division of the
ARCH National Respite Network
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Visit the NRC Legislative Action Center to endorse the Lifespan Respite Care Reauthorization Act (HR 3266) and send a message directly to your US House Representative. Click Here!
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Mission of the National Respite Coalition
The Mission of the ARCH National Respite Coalition is to secure quality, accessible, planned and crisis respite services for all families and caregivers in need of such services in order to strengthen and stabilize families, and enhance child and adult safety.
The Coalition works to achieve these goals by preserving and promoting respite in policy and programs at the national, state, and local levels.
When you join the National Respite Network you are automatically a member of the National Respite Coalition, the Policy Division of the ARCH National Respite Network, and can receive the latest updates on Congressional legislative activity important to respite and the families you serve, as well as information from the states about program implementation. The National Respite Network is a program of the Chapel Hill Training-Outreach Project.
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FACTS and Talking Points for Respite
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- NEW! Researchers at the University of Pennsylvania studied the records of over 28,000 children with autism ages 5 to 21 who were enrolled in Medicaid in 2004. They concluded that for every $1,000 states spent on respite services in the previous 60 days, there was an 8 percent drop in the odds of hospitalization (Mandell, David S., et al, 2012).
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- NEW! When it comes to their own situation, family caregivers are most concerned about taking care of their own personal health (84%), not having enough respite care (83%), and meeting monthly financial needs (77%). To see more survey results, see the NFCA/Allsup Family Caregiver Survey, 2011.
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- NEW! From AARP, State-by-State Table on the Number of Caregivers and the Economic Value of Caregiving, 2009, click here.
Source: Lynn Feinberg, Susan C. Reinhard, Ari Houser, and Rita Choula, Valuing the Invaluable: 2011 Update The Growing Contributions and Costs of Family Caregiving, AARP Public Policy Institute, 2011. To see full AARP Brief, click here.
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- NEW! Respite and Caregiving Fact Sheet, 2012, Click here.
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- Updated Fact Sheet: Cost-Savings and Benefits Due to Respite, 2012 , Click here.
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- Making the Case: Saving Your State’s Caregiver Support Programs --Talking Points for Advocates, Administrators, Providers and Caregivers, Family Caregiver Alliance, December 2009, click here.
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2011 Caregiving Fact of the Year
In 2009, about 42.1 million family caregivers in the United States provided care to an adult with limitations in daily activities at any given point in time, and about 61.6 million provided care at some time during the year. The estimated economic value of their unpaid contributions was approximately $450 billion in 2009, up from an estimated $375 billion in 2007. This amount ($450 billion) is more than total Medicaid spending in 2009, including both federal and state contributions for both health care and LTSS ($361 billion), and as much as the total sales of the world’s largest companies, including Wal-Mart ($408 billion in 2009, the most of any company) and the three largest publicly held auto companies combined (Toyota, Ford, Daimler: total $439 billion). Including caregiving for children with special needs in the total would add 4 to 8 million additional caregivers and another $50 to $100 billion to the economic value of family caregiving (Lynn Feinberg, Susan C. Reinhard, Ari Houser, and Rita Choula, Valuing the Invaluable: 2011 Update The Growing Contributions and Costs of Family Caregiving, AARP Public Policy Institute, 2011). To see full AARP Brief, click here.
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Summary of the Lifespan Respite Act
(PL109-442):
Use of Funds:
The Act authorizes competitive grants to Aging and Disability Resource Centers in collaboration with a public or private non-profit state respite coalition or organization to make quality respite available and accessible to family caregivers regardless of age or disability. The law allows grantees to identify, coordinate and build on federal, state and local respite resources and funding streams, and would help support, expand and streamline planned and emergency respite, provider recruitment and training, and caregiver training. Grantees will have the option of using funds for training programs for family caregivers in making informed decisions about respite services; for other services essential to the provision of respite; and for training and education for new caregivers.
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What is a Lifespan Respite Program?
A lifespan respite program provides a coordinated system of accessible, community-based respite care services for family caregivers of children and adults with special needs.
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Lead Agency Eligibility
Funds would be provided on a competitive grant basis to designated state agencies appointed by the Governor. The state lead entity must involve an Aging and Disability Resource Center and work in collaboration with a public or private nonprofit statewide respite coalition or organization (memorandum of agreement required in application). Priority would be given to applicants who show the greatest likelihood of implementing or enhancing lifespan respite care statewide.
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Who Can Access Lifespan Respite Programs?
Caregivers who are family members, foster parents, or other adults providing unpaid
(clarified in report language) care for an adult or child with a special need may access these programs. Adult with special need is defined broadly as a person 18 years of age or older who requires care or supervision to meet the person's basic needs, to prevent physical self-injury or injury to others, or to avoid placement in an institutional facility. A child with a special need is a person less than 18 years of age who requires care or supervision beyond that required of children generally to meet the child's basic needs or prevent physical self-injury or injury to others.
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Application Submission
The Governor submits application on behalf of the State Agency that administers the Older American's Act, the State's Medicaid program, or another agency designated by the Governor.
Federal Administration
Secretary of Health and Human Services is required to work in cooperation with the National Family Caregiver Support Program Officer of the Administration on Aging and other respite care programs within the Department to ensure coordination of respite for family caregivers
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Funding Authorization:
(1) $30,000,000 for fiscal year 2007; (2) $40,000,000 for fiscal year 2008; (3) $53,330,000 for fiscal year 2009; (4) $71,110,000 for fiscal year 2010; and (5) $94,810,000 for fiscal year 2011.
National Resource Center:
Establishes National Resource Center on Lifespan Respite Care
GAO Report:
A GAO report on Lifespan Respite Programs is required by 2011.
Click here for a copy of the Act.
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President Bush signs the Lifespan Respite Care Act, Washington, DC, December 21, 2006. |
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Lifespan Respite Legislative History
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Public Law PL109-442, Lifespan Respite Act of 2006, click here
Section-by-Section Summary of the Act, click here
Congressional Record of House and Senate Floor Statements on Passage of Lifespan Respite Care Act (December 2006), click here.
This document provides the actual transcribed Congressional Floor Statements of key Senators and House Members as they debated final passage of the Lifespan Respite Care Act in 2006. These floor statements, which carry the weight of law, provide critical information on Congressional intent for how the federal government, as well as states, are expected to implement Lifespan Respite programs.
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House Energy and Commerce Committee Report on Lifespan Respite Care Act (September 2006), click here.
The House Committee report is the only Congressional Report in the legislative history of the Lifespan Respite Care Act. It carries the force of law and elaborates on
Congressional intent, especially related to who is to be served by state lifespan respite programs and how the program is to be administered at the state and federal levels.
Statements of Reps. Ferguson and Langevin in support of an amendment to the Labor/HHS/Education appropriations bill fund Lifespan Respite at $10 million in FY 08 (CR, page H8010, July 17, 2007). Click here.
Statements of Senator Warner, Clinton, Specter, and Harkin in support of an
amendment to the Labor/HHS/Education appropriations bill to fund Lifespan Respite
at $10 million in FY 08 (CR, page S13236, October 23, 2007). Click here.
Senator Clinton’s 2005 Congressional Record Statement on the Introduction of the
Lifespan Respite Care Act of 2005 (CR, page S6933, June 21, 2005). Click here.
Senator Clinton’s 2003 Congressional Record Statement on the Introduction of the
Lifespan Respite Care Act of 2003, S. 538 (CR, pages 3190-91, March 5, 2003), Click here.
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Congressman Langevin's 2003 Congressional Record Statement on the Introduction of HR 1083.Click here.
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Contact
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Jill Kagan, MPH
Chair, National Respite Coalition
Policy Division of the ARCH National Respite Network
4016 Oxford St.
Annandale, VA 22003
703-256-2084
This e-mail address is being protected from spambots. You need JavaScript enabled to view it
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The New York Times
The New Old Age
December 31, 2010
By KAREN STABINER
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Contact Congress
To contact your US House member, visit here.
To contact your US Senator, visit here
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| NEW! 46 National Organizations Send Letter of Support for Lifespan Respite Reauthorization, click here. |
NEW! Alert and Talking Points to Secure Cosponsors for Lifespan Respite Reauthorization Act (HR 3266). Click here
Dear Colleague Letter from Rep. Langevin and Rep. McMorris Rodgers seeking cosponsors for HR 3266, click here
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Letter from 31 National Organizations to Super Committee in Support of Lifespan Respite and other Family Caregiver Supports. Click Here
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National Respite Coalition delivers two official statements to Senate HELP Committee Staff on OAA and Lifespan Respite Reauthorization (signed by 35 national organizations)
National Organization Sign on Letter to Senate Appropriators (identical letter sent to House Subcommittee). Click here.
State and Local Organization Letter to Senate Appropriators (identical letter sent to House Subcommittee), click here. |
House Members' Letter in Support of FY 12 Funding for Lifespan Respite, Click here
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NRC's Legislative Alert for Increased Funding for Lifespan Respite in FY 2012, Click here
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NRC’s Request for FY 2012 Funding Increase for Lifespan Respite.
Click here.
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NRC Written Senate Testimony in Support of FY 12 Funding for Lifespan Respite, May 2011. Click here
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Fact Sheet: Benefits and Cost-Savings of Respite. Click here.
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Letter to OMB from National Organizations Supporting FY 2012 Funding Increase for Lifespan Respite. Click here.
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NRC House Testimony for
FY 11 Funding for Lifespan Respite: Click here.
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ObamaTransition Team Brief:
Presented to President-elect Obama's Transition Team (Dec. 2008). Click here.
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Congressional Letter to President Obama in support of FY 2011 full funding for lifespan respite. Click here.
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NRC Testifies before the House Veteran’s Affairs Health Subcommittee on Meeting the Needs of Family Caregivers of Veterans. (June 4, 2009). Click here.
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Check back here for Conference Highlights Soon! |
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ARCH and the Family Caregiver Alliance are collaborating to
provide Caregiver and Lifespan Respite T/TA.
Click here for more information |
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